منابع مشابه
Why data-sharing policies matter.
D ata from biomedical research are more broadly available to the research community today than in the past. Technical developments, such as web-based databases, have played a role in this transition, but so has a fundamental shift in the view of who ‘‘owns’’ research data. The model of the investigator owning data has been increasingly replaced by one in which society owns data. Scientific and ...
متن کامل1 Why Missing Data Matter
This section begins with a chapter illustrating how missing data can cloud inferences to be drawn from clinical trials – in other words, why missing data matter. Chapter 2 focuses on the mechanisms that give rise to missing data. Understanding these mechanisms is the essential background needed to understand the possible consequences of missing data. Chapter 3 discusses estimands – what is to b...
متن کاملA review of journal policies for sharing research data
Background: Sharing data is a tenet of science, yet commonplace in only a few subdisciplines. Recognizing that a data sharing culture is unlikely to be achieved without policy guidance, some funders and journals have begun to request and require that investigators share their primary datasets with other researchers. The purpose of this study is to understand the current state of data sharing po...
متن کاملStoring complex data sharing policies with the Min Mask Sketch
More data is currently being collected and shared by software applications than ever before. In many cases, the user is asked if either all or none of their data can be shared. We hypothesize that in some cases, users would like to share data in more complex ways. In order to implement the sharing of data using more complicated privacy preferences, complex data sharing policies must be used. Th...
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ژورنال
عنوان ژورنال: Proceedings of the National Academy of Sciences
سال: 2009
ISSN: 0027-8424,1091-6490
DOI: 10.1073/pnas.0910378106